My name is Peter Jackson and in June 2013 I was diagnosed with Parkinson’s Disease or PD or Bloody Parkinson’s or BP. PD or BP attacks the central nervous system reducing the brain’s ability to control movement. I was 66 years old and had noticed an empty feeling and a little shakiness in my right arm and hand which I reported to my GP, who referred me to a Consultant Neurologist. His letter to my GP said I was a ‘charming’ man (doctors’ code for not a complete wombat) and that while I had a tremor and found difficulty with typing, I had no history of visual, hearing, speech or swallowing problems and no other limb symptoms.
Now PD is something that I suspect we have all heard of: associated with tremors and stiffness and incurable and crippling. So to hear that I was suffering no other symptoms made me interpret the little list as things to look forward to, like blindness, deafness, squeaky voice, choking and a wheelchair, or mobility scooter if lucky. Though a mobility scooter would at least allow me to terrorise other shoppers in Waitrose.
It is almost two years since that diagnosis and the reason for the blog is that I want to shake a fist and maybe swing a boot at PD and at the same time give an insight into its murky secrets for those who are interested – I’ll let you decide what use my outpourings are or aren’t. Feel free to pass them on.
Names and places are in the main changed or I hope disguised. I’m not a medical expert, so don’t please follow anything that might be perceived as advice. In any case my memory may be shaky as well as my right hand. And don’t forget Bloody Parkinson’s is not Alzheimer’s, nor is it a form of dementia. There are said to be 127,000 sufferers in the UK and a few famous sufferers worldwide: Michael J Fox, Muhammed Ali, Robin Williams, Billy Connolly.... and me. Worse things can happen to you than PD!
Hi Peter just spent time reading your blog. It has really helped me.
ReplyDelete....Thank you
Lynne
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